Day 7: Cort Johnson

 

HealthRising.org
The Godfather of online chronic illness resources
Upcoming projects

Cort is the founder of HealthRising.org , one of the most valuable online resources for chronic illnesses.  He talks about the intersection between long COVID and ME/CFS, provides resources for people with long COVID, and talks about the future for both diseases. 

 

Long COVID Research
Thus far Health Rising has already done almost 20 blogs on long COVID. Thanks to the Solve ME Initiative's support we've also just begun a regular series reviewing the latest long COVID research findings.

Long COVID #1: Big Studies, an FM Connection, & Low Energy Brains…

A COVID-19 Long Hauler Case Report Points To ME/CFS, Autoimmunity - and IVIG Treatment

RAS and Bradykinin: Where COVID-19 and ME/CFS Meet?

 

ME/CFS Research
Just as people with ME/CFS should pay attention to long COVID research so should people with long COVID pay attention to ME/CFS and FM research.

Topics like neuroinflammation, limbic system activation, low energy production, metabolism, blood flows to the brain and muscles, microcirculation problems, the autonomic nervous and immune systems all seem likely to play a role in long COVID and Health Rising has covered them extensively.

Coping

10 Tips for COVID-19 Long-Haulers Seeking Disability Benefits - Health Rising

An Offering: ME/CFS Resources and Support for the COVID-19 Long Haulers

 

Besides these Health Rising provides support on pacing, coping, how to maximize your doctor's appointments, how to get better sleep, how to exercise, ways to help with pain, orthostatic intolerance, diets, how to get disability, how to get financial assistance.

 

Our Tips For Newbies page used a community survey to find out what, if ME/CFS could have gone back in time, what they would have done differently

 

We have blogs on how to differentiate between depression and ME/CFS and how to prove to your doctor that, if you have ME/CFS, that it is a real and serious condition. Since many people with long COVID will meet the criteria for ME/CFS these will apply.

 

How to Prove to Your Doctor You've Got Chronic Fatigue Syndrome (ME/CFS) and are Not Just Depressed

 

Ten Ways to Prove That Chronic Fatigue Syndrome (ME/CFS) is a Serious Illness

 

 

Advocacy

 Health Rising will be heavily informing and promoting long COVID advocacy efforts.

From $1.15 Billion in Long COVID Funding to ? Emily Taylor on What Happened and What's Next

 

 

**Disclaimer: Please consult your physician before taking on any new fitness, breathing regime, treatment option, high dose thiamine, diet...anything. In participating in this plan, class or demonstration, you agree that you are doing so at your own risk. You should understand that when participating in any exercise or breathing program or any new technology or approach, there is the possibility of physical injury. Please be mindful and listen to your body. Trilogy and Healing Codes Coaching and all suggestions in any video are not intended to diagnose, prescribe, treat, or cure any illness – physical or mental. Always consult with your physician before starting any new diet or supplement regimen. No advice offered is medical. In voluntarily participating in these exercises or if you decide to adopt any certain way of eating, take any supplements, use any of the methods discussed or portrayed, you assume all risk of injury to yourself, and agree to release and discharge stompinAngel Productions, LLC from any and all claims or causes of action, known or unknown, arising out of stompinAngel Productions, LLC's negligence.

 

Back to Full Schedule